Category: MS Journey

MS Journey is where I share the personal stories, reflections, and lived experiences that shape my life with multiple sclerosis. These posts highlight resilience, daily habits, advocacy, and the moments that help me navigate MS with strength and honesty.

  • 🧡 My MS Journey | You With The Sad Eyes A Memoir by Christina Applegate

    The author reflects on discovering the podcast MeSsy and Christina Applegate’s memoir You With the Sad Eyes, which resonates deeply due to their shared experience with multiple sclerosis (MS). Applegate’s openness about her struggles offers inspiration, encouraging a positive lifestyle change in the author while highlighting the importance of honest conversations surrounding MS.

  • 🧡 My MS Journey | Discovering the MeSsy Podcast and the Stories That Shape Us

    The author shares their experience discovering the MeSsy podcast hosted by Christina Applegate and Jamie Lynn Sigler, relating to their journeys with multiple sclerosis (MS). The podcast features candid discussions blending humor and vulnerability, focusing on MS and life. The author appreciates the balance between the hosts’ perspectives and looks forward to learning more through…

  • 🧡 My MS Journey | The Night I Went Searching for Answers at an MS Patient Event

    The author reflects on the changes in their life following an MS diagnosis, highlighting the importance of community and shared experiences. Attending an MS patient event, they learned that MS manifests differently for everyone, emphasizing personal journeys. They realized the need for self-advocacy and the value of individual stories in navigating their path.

  • 🧡 My MS Journey | Mean Baby by Selma Blair

    The post discusses the author’s journey with multiple sclerosis (MS) and the impact of Selma Blair’s memoir, “Mean Baby.” Blair’s candid storytelling highlights her experiences with MS, weaving it into her broader life narrative. The author emphasizes the uniqueness of individual MS journeys and the importance of personal advocacy.

  • 🧡 My MS Journey | The Mono Chapter I Never Expected to Matter

    When Doctors Started Asking About Mono During my first neurologist visit after my MS diagnosis in 2023, I heard a repetitive question. The doctor asked if I ever had mononucleosis. The same question came up multiple times during my hospital stay when the diagnosis became official. At first, I wondered why everyone suddenly cared about…

  • 🧡 My MS Journey | Sixth Ocrevus Infusion, New Routines, and an Unexpected Family Emergency

    The author shares experiences from a recent infusion treatment amidst personal turmoil. Living in Mebane, NC, the author navigates new lab procedures and a change in medical facilities. This day coincides with a family crisis as the author’s grandmother suffers a heart attack in Ohio, facing recovery challenges. Optimism persists amid adversity.

  • 🧡 My MS Journey | My First Ocrevus Infusion and the Three-Year Price Roller Coaster

    The author reflects on the emotional and financial challenges following a diagnosis and treatment for multiple sclerosis. Despite the support from friends and family during infusions, the staggering costs—rising from $131,000 to $167,400 at a hospital compared to $96,643 at an infusion center—highlight the systemic issues in healthcare pricing.

  • 🧡 My MS Journey | Beat Autoimmune: The Six Lifestyle Keys That Changed My MS Journey

    Palmer Kippola’s “Beat Autoimmune” emphasizes six lifestyle keys crucial for managing autoimmune conditions. The author shares her transformative journey, detailing significant changes in nutrition, gut health, stress management, toxin reduction, infection awareness, and hormone balance. This holistic approach led to remarkable improvements in her health and vitality.

  • 🧡 My MS Journey | My First MRI Update Since Diagnosis: A Surprising Step Forward

    After months of lifestyle changes post-MS diagnosis, the author approached their May 2024 MRI appointment with cautious optimism. The results revealed healing with no new lesions, indicating significant progress. The journey continues, marked by perseverance and determination, balancing health habits with joy, reinforcing a positive outlook.

  • 🧡 MS Journey | Feeling Like an Inflatable Tube Man at the Grocery Store

    The author reflects on experiencing persistent symptoms after a medical diagnosis, describing a particularly challenging moment at a grocery store where they struggled to maintain balance. As they navigated the store using a cart for support, they learned the importance of taking small steps forward, even amidst discomfort and awkwardness.