recent posts
- 🧡 MS Journey | Feeling Like an Inflatable Tube Man at the Grocery Store
- How I Built My Website and Learned the Truth About “Easy” Blogging
- 📚 Book Spotlight | How Atomic Habits Helped Me Build a Healthier Life After My MS Diagnosis
- 🪶 Feathered Friends | From Chipping Sparrows to Cooper’s Hawks: My Latest Bird Finds
- 🏈 Game Day Stories | My 2019 NFL Draft Experience in Nashville
Category: MS Journey
MS Journey is where I share the personal stories, reflections, and lived experiences that shape my life with multiple sclerosis. These posts highlight resilience, daily habits, advocacy, and the moments that help me navigate MS with strength and honesty.
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The author reflects on experiencing persistent symptoms after a medical diagnosis, describing a particularly challenging moment at a grocery store where they struggled to maintain balance. As they navigated the store using a cart for support, they learned the importance of taking small steps forward, even amidst discomfort and awkwardness.
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This month, the President proposed a Fiscal Year 2027 budget that includes a twelve percent cut to the NIH, which is crucial for MS research. Advocates, including individuals with MS, are urging Congress to reject these cuts and support funding for medical research, emphasizing the importance of advocacy in driving progress.
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The author participated in their first MS research study led by Dr. Malachy Bishop, focusing on career decisions for individuals with MS. They aim to support others facing uncertainty about their future careers. By sharing their experience, the author encourages more people with MS to participate in research, emphasizing the importance of every voice.
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A snapshot of me in a hospital wheelchair before my MS diagnosis, taken during the moment I realized my symptoms needed real answers.
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After a hospitalization for Relapsing Remitting MS, the author navigated numerous medical appointments to determine a treatment plan. Following intense discussions about treatment options and risks, they initially planned to use Tysabri but ultimately chose Ocrevus due to a positive JC virus test, finding relief in the new direction while managing fears about their condition.
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Our summer road trip took an unexpected turn when my grandma attempted a marble-railing slide at the Lincoln Memorial. Her legendary fall, a broken hip, and ten hospital days shaped a story that later guided my mindset during my MS diagnosis. Humor and resilience carried us through.